Sickle Cell, the NHS, and the Fight to Be Believed — with Prof. Arlene Wellman MBE

About this episode

<p>It's World Sickle Cell Day, and the NHS Modernisation Bill, which proposes a single patient record bringing together a patient's full medical history in one place, has just reached committee stage in Parliament.</p><br><p>In this episode, we speak with Professor Arlene Wellman MBE: a senior nurse leader and strategic adviser at the Florence Nightingale Foundation with over 27 years' experience across the NHS, and the first internationally educated nurse to serve as a Group Chief Nurse. She's also the mother of a son living with sickle cell disorder.</p><p>We talk about what it's like to repeatedly explain a chronic condition mid-crisis, the gaps in NHS information-sharing that can cost real harm, and whether the single patient record will actually reach the people who need it most, the ambulance crew at 2am, the unfamiliar A&amp;E department, the moment when missing information is the difference between fast treatment and dangerous delay.</p><br><p>Guest: Professor Arlene Wellman MBE, Florence Nightingale Foundation</p><p>The Marvyn Harrison Podcast: culture, identity and fatherhood, hosted by the founder of Dope Black Dads.</p><br><p>Watch on YouTube: https://www.youtube.com/@MarvynHarrison</p><p>Listen on Apple Podcasts: https://podcasts.apple.com/gb/podcast/the-marvyn-harrison-podcast/id1456522027</p><p>Listen on Spotify: https://open.spotify.com/show/3cIh6ejnk3lUUVhqSKzPUS</p><p>Instagram: https://www.instagram.com/marvynharrisonpodcast</p><p>Partnerships and sponsorship: marvyn@belovd.agency</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p>